I got ALS this weekend. I know, I know. I was diagnosed on December 26th, 2007. It has been confirmed and reconfirmed. I have used up many words discussing it but I didn’t know how good I had it. I am starting to get an inkling of what this disease is now and it’s a whole new ball game.
Now we (me and my super squad of elite action heroes that could make a Navy Seal cry from their disapproving glance) are looking for an aid.
Now we are trying to find a way to pay for an aid (Kathy estimates 11,000 per month).
Now people are over almost all the time tending to the most personal and intimate needs.
Now I’m afraid to walk a few steps on my own.
Now the Vietnamese girls at the nail shop cry and hug me when they see me wheel by.
Now I am shrinking and shrinking so I feel like a character from “Honey, I shrunk the Crip” and expanding and growing so I feel like I am about to have god or Mel Gibson or someone whisper the secret of life into my ear.
I am the Black Knight from Monty Python and the Holy Grail.
I am a float at the Macy’s Parade with a slow leak.
I am a dripping salt water faucet.
I am performing on Friday in Los Angeles. One of my angels, Jeannine Frank has set up the whole thing. I fear it’s the last show. I hope not. If you’re around, come hear it – I won’t be this sad – I know it because I’m never sad when I perform.
I won’t be back until Sunday so no blogs until then.
The show is 8pm at Steinway Hall, 12121 Pico Blvd at Bundy
By the way – you are the Muselings and I love you.