tag:blogger.com,1999:blog-36459071.post9182633968575625519..comments2023-04-26T09:02:11.428-07:00Comments on Carlamuses: It's depressing as fuck because it's true.Carla Zilbersmithhttp://www.blogger.com/profile/18170926133449647900noreply@blogger.comBlogger22125tag:blogger.com,1999:blog-36459071.post-62431837857731452452010-06-16T19:14:16.096-07:002010-06-16T19:14:16.096-07:00This is my first time on your blog, and it is sad ...This is my first time on your blog, and it is sad but inspiring...I wish I knew you personally - your strength of words is awesome.Anoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-13382953649271578132010-02-11T16:25:03.041-08:002010-02-11T16:25:03.041-08:00Carla, this post brought me to tears… you so eloqu...Carla, this post brought me to tears… you so eloquently wrote what my mother must have been feeling during the last part of her ALS. She loved life as much deeply and passionately. Though my mother’s sense or reality may have been a tad bit skewed- She told each of her six children (separately) that she had given up a great singing/acting career to become a mother… later in life hearing her sing and roughly play the piano I realized that my mother had deceived me. But it was her story telling and zest for life that I miss. Your gift is that you are shaking us by the shoulders and saying “listen up people –LIVE LARGE.” And I for one Carla hear you loud and clear… life is meant to be lived out loud.<br />I will be in San Francisco next week visiting my Irish sister. Though you won’t meet us, we will go somewhere fabulous and toast you, the wonderful, loving, compassionate and talented Carla who we met through a blog and to whom we wish safe journey.<br /><br />Love,<br />Maggiemaggienoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-26677796127814702442010-02-10T18:00:33.987-08:002010-02-10T18:00:33.987-08:00I know. It is so not fair.I know. It is so not fair.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-45836813070385831042010-02-09T11:02:38.044-08:002010-02-09T11:02:38.044-08:00There are so many ugly, horrible things that can a...There are so many ugly, horrible things that can afflict human kind that if you put them to a list, it would go on and on. I think that people very often keep their heads in the sand, so not to have these things constantly on their minds, to keep their sanity, because sooner or later it hits you square in the face and you now have to deal with it - there is no way out. It is right that we should be using every moment of every day in a way that as you put it - treat it like it could be our last. We can honour each day and glorify all of it's blessings but the only problem to this, is that many of us are very close to someone suffering or who has suffered greatly and to let go of that is a hard thing to do. So we just try our best and go to bed each night giving thanks for the day and all the blessings it has given, and if we cry for someone close to us, that's ok, we are only human. Bless your heart Carla.Gail Hildebrandtnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-48994328517393528062010-02-08T22:40:13.919-08:002010-02-08T22:40:13.919-08:00I wish that each of us could spend a day or a week...I wish that each of us could spend a day or a week living in your body with ALS & let you live in our bodies. I hate that you have to suffer so much, and like so many others, wish that I could make it go away or ease it. Thank you for sharing the shit of ALS.<br /><br />Much love,<br />BillieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-59703241800879191252010-02-08T11:32:00.041-08:002010-02-08T11:32:00.041-08:00Sometimes you just leave me speechless...
BobSometimes you just leave me speechless... <br /><br />BobAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-44781856994044028782010-02-08T09:34:56.523-08:002010-02-08T09:34:56.523-08:00An inspirational message-I'll try to remember ...An inspirational message-I'll try to remember and be grateful for the things Itake for granted. I though my past year was tough-I'm heading for a divorce, but you put things in a clearer perspective. Thank you and best wishes,<br />VictorUnknownhttps://www.blogger.com/profile/02864141875088850176noreply@blogger.comtag:blogger.com,1999:blog-36459071.post-68128916438052050412010-02-07T21:05:56.902-08:002010-02-07T21:05:56.902-08:00carla
how you are doing your life and sharing it&#...carla<br />how you are doing your life and sharing it's most difficult,desparate, and insightful moments is nothing short of a miracle we are all witnessing and it is changing me.<br />thank you again and again and againtracyhttps://www.blogger.com/profile/07395014496303701069noreply@blogger.comtag:blogger.com,1999:blog-36459071.post-13974659604344122652010-02-07T08:09:25.944-08:002010-02-07T08:09:25.944-08:00I do.
I will.
I promise.I do.<br /><br />I will.<br /><br />I promise.mehttps://www.blogger.com/profile/16959540491700908901noreply@blogger.comtag:blogger.com,1999:blog-36459071.post-69058511938009610222010-02-06T23:33:16.359-08:002010-02-06T23:33:16.359-08:00Tears falling down my cheeks and just the message ...Tears falling down my cheeks and just the message I needed to hear tonight. Your words, as always, touch my heart. I promise to get over myself, wake up tomorrow and live my wonderful life while I still can because, who knows what's around the corner. Thank you for keeping on writing even though its gotten harder and harder. I know there are so many of us out here who appreciate it and light up whenever we see a new blog posting. I know I do. I want to share a song from my choir "You Are Loved." Much better if you could hear it and I'd like to come sing it for you, but in the meantime here are some of the words. Sending you my Love, KK<br /><br /><br />You are loved<br />Deeply loved<br />You are a well cherished garden<br /><br />You are loved<br />Deeply loved<br />You are a treasured child<br /><br />All your life<br />All your days<br />From the very first moment of being<br />You've been loved <br />Greatly loved<br />You are loved<br /><br />Drink it in<br />Drink it in<br />Love is the life giving water<br /><br />Take it in<br />Take it in<br />Know it in every cell<br /><br />You've been loved<br />Greatly loved<br />You are loved<br /><br />Drink it in<br />Drink it in<br />This is what nourishes spirit<br /><br />Take it in<br />Take it in<br />This is what opens the heart<br /><br />Soak it in to our toes<br />So the roses we are fully blossom<br />We've been loved<br />Greatly loved<br />We are LOVEAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-17299294171472762592010-02-06T10:44:54.671-08:002010-02-06T10:44:54.671-08:00this day i am here to say
that the good i do
is i...this day i am here to say<br />that the good i do <br />is in reflection <br />of the wisdom i have gained<br />from knowing you<br /><br />i have met you in person a total of ONE time<br />i have read all your blogs herein<br />i have changed my life<br />to incorporate<br />your wisdom, humor, curse words (yes, FUCK is my favorite word)<br />and whole and holy outlook on life.<br /><br />thank you from the bottom of my heart, the top of my head, and the soul of my self...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-82352148111097364052010-02-06T10:25:32.409-08:002010-02-06T10:25:32.409-08:00Hi Sweet Girl,
Well, you have done it again. The...Hi Sweet Girl,<br /><br />Well, you have done it again. The wake up call that we all need to appreciate, love, enjoy what life we have left for however long we have it. It is raining today and I was feeling grumpy and bored now I will rejoice in the rain, get over my silly mood and get on with enjoying my day. All because of a beautiful red head who teaches life lessons to those who need it. <br /><br />Love, PatAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-48982183997298200402010-02-06T10:07:41.275-08:002010-02-06T10:07:41.275-08:00I agree with Stephanie about loving to read the co...I agree with Stephanie about loving to read the comments to your blog. The love and wisdom you pass on is so evident in how your devoted followers respond.<br />Kathy's creative response to an awkward situation is a lesson for all. I love the thought process she used. AND I now know "hella raw" is a good thing.<br />Jack/DADJackhttps://www.blogger.com/profile/12281042125944950827noreply@blogger.comtag:blogger.com,1999:blog-36459071.post-23725016332451215622010-02-06T06:14:43.794-08:002010-02-06T06:14:43.794-08:00I always love reading the comments on this blog. A...I always love reading the comments on this blog. And I especially loved reading Kathy's story this morning. Talk about inspired motherly jujitsu!<br /><br />If I were to describe what comes to me when I think of a Carla-channeling moment, yes it's the path of humor/gratitude/love. Might I add creative mischief to the mix? <br /><br />Brilliantly executed Kathy.<br /><br />xoxo<br /><br />stephanieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-60646020712866086922010-02-05T13:42:35.504-08:002010-02-05T13:42:35.504-08:00YES YES to people who "decide to give up thei...YES YES to people who "decide to give up their self-inflicted pain and enjoy their wonderful life"<br /><br />Beautifully put. So true. <br /><br />Attitudes hard earned by you and me through ALS and cancer.<br /><br />Love you,<br />AllisonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-73784795654923042462010-02-05T10:21:03.870-08:002010-02-05T10:21:03.870-08:00I'd like to share a Channeling-Carla moment. ...I'd like to share a Channeling-Carla moment. Last week one of my son's basketball teammates got chewed out in the locker room for having a cell phone in his sock (not while playing, just in the locker room, and it was off). Suffice it to say, the tirade was humiliating, and quite disturbing to his teammates. In my typical fashion, I was spitting fire and ready to tear this coach a new one. But I honest-to-God thought, "What Would Carla Do?" Clearly I didn't get it exactly right, because I baked cookies. But still. At the end of practice the next day I brought cookies for everyone and told the chewed-out boy he got his own bag, and asked him if he knew why. He said no. I said, "Because I really like your idea for how to carry a cell phone" and then I showed him I had mine in my sock. He raised his arms, hooted, and gave me a big hug. Then one of his teammates told Eric, "Your mom's hella raw" (which I found out is a good thing) and Eric replied, "Yes, she is." It was a true highlight of my mothering career, and it would not have happened if not for you, Carla. I will continue to try to take the path of humor/gratitude/love that you have so clearly and generously mapped out for all of us, as best as I can. I am grateful beyond words.<br /><br />Love,<br />KathyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-67540466450208943082010-02-04T21:54:30.406-08:002010-02-04T21:54:30.406-08:00I am quite officially very, very sad. I'm goi...I am quite officially very, very sad. I'm going to miss you when you have to leave us. <br /><br />When you were my teacher, you taught me to see the good in things and how to cope with adversity. It only makes sense that you are providing a thorough, frightening, and inspiring guide for dying. And living. <br /><br />THANK YOU.Greta Koeniginnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-70238653789376011512010-02-04T20:41:30.916-08:002010-02-04T20:41:30.916-08:00How do we keep forgetting? I find your voice gene...How do we keep forgetting? I find your voice generously prophetic, encouraging us to live and love life in every miraculous moment given to us. This last entry is a book unto itself, its message speaking volumes. Your blog is your gift that keeps giving. And I thank you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-12964152803677850622010-02-04T20:31:00.294-08:002010-02-04T20:31:00.294-08:00enlightenment
here and now
here and now
here and n...enlightenment<br />here and now<br />here and now<br />here and now<br /><br />thank you for all that you have given me along these lines. i am surely sure that i can surely say that you have surely imparted me with more wisdom and reality than i have ever had before.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-64481993260075082732010-02-04T19:51:48.758-08:002010-02-04T19:51:48.758-08:00Hi Carla,
Wish that our love could lift you up of...Hi Carla,<br /><br />Wish that our love could lift you up off the ice floe and rejoin your spirit with a healthy, vibrant body...<br />I saw someone who looked like you run past the gym window today and I burst out crying when I realized it wasn't you. I wish, I wish, I wish....<br />you are so loved...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-28062497203146876702010-02-04T18:42:38.223-08:002010-02-04T18:42:38.223-08:00Of course, every time I read a message like this, ...Of course, every time I read a message like this, I think, "she's killing me softly with her song". <br /><br />You know what I am most guilty of; ingratitude.<br /><br />Since this horrible fucking disease has hit you, I day never goes by that I don't think about you and how what I'm doing at that moment(a thing I might have been tempted to lament in days gone by) like driving a car in traffic in the rain, or being kicked in bed by a squirmy 4 year old and being able to carry my pillow to the sofa and go back to sleep,or getting my period and changing my pad) is actually a grand blessing. I can do it myself. <br /><br />I can do anything I want, and you can't, and it's not fair. If anyone should suffer it should surely be the miserable complainer (me) and not the joyful trouper (you).<br /><br />If it brings you any comfort, please, know that your suffering has enlightened me. I have not been worthy of the gift of enduring, surviving, living, but I was given it anyway.<br /><br />Let me be worthy. That's my mantra now.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-36459071.post-47426752204030428642010-02-04T18:39:00.929-08:002010-02-04T18:39:00.929-08:00This is one of the reasons I think of you every da...This is one of the reasons I think of you every day. I got the smallest tiniest taste, a tiny waterdrop of disability when I broke my hip. Every day I cherish moving. This morning I got pissy when I got to my car about something stupid and I stopped and closed my eyes and thought - "At least I could walk from the house to my car, and not only that, I had my coffee cup in my hand." Whenever I start getting angsty or complain-y or poopy or anything - I think of you, Carla. And I stop. I found out today some wolves I loved died recently and I talked to a wise horsewoman about death and horses as I keep processing Pickles' death so I can ride again and have that heartfelt joy that comes from it. This life is so short and precious. I get it and I keep reminding myself to do what I love and appreciate all this because we are flowers that bloom and die, and I try to dump the stuff that doesn't matter that I can get all wound up in. And yes, I do forget but then I think of you, Carla. I hate that you have this disease so much. I hate it so much. But you have given me a gift, a light, and fuck ALS I fucking hate it so much.Laura Dnoreply@blogger.com